The mission of Alyse's website, No BS about DS, is to debunk the myths around Down Syndrome, by creating a place where parents can feel supported and educated.
5 words that describe your "job": mother, wife, sister, friend, advocate
Your child's name and age: Felicity 2
How does Felicity inspire you? The motivation and drive Felicity has to accomplish a new skills is inspiring! She never gives up!
What is an activity your whole family loves to do together? We like to take small adventures and see where the day takes us. For an example, one warm day we all got into the car and drove a few hours to Michigan, had fun on the beach and some lunch!
What’s the one thing you wish people knew about your child with special needs? That she’s more than her diagnosis. She’s just Felicity, a toddler with sass, a sense of humor, big marble colored eyes, intelligent, and beautiful.
How do you survive a tough day of parenting? With the help of my support system, friends and tears that make me feel better! My friends who also have children with disabilities help, A LOT because they absolutely get it. They feel the exact same way and they listen. We end with positives and usually feel better after a good cry! There is such a strong connection you have with even strangers you’ve met in support groups online. It’s amazing and I’ve gotten through some pretty tough times with a few friends I’ve never even met in person.
What is the one thing in your play space Felicity can't live without? Her trampoline. She has a ton of energy so I think she loves to spend it jumping.
Felicity's favorite toy? Beatbo
What's the one thing you would drive back to get if you forgot it when your are out with Felicity? Her beatbo’s or blanket.
Felicity's favorite app? She loves to listen to music.
What is the last thing you purchased for yourself that made you really happy? A few shirts, a sweater and a couple pairs of pants that are comfortable!
What advice would you give to a (new) Mom with a child with special needs? It’s okay to feel what you're feeling right now, we all have felt it. The feelings of grief of the loss of the child we thought we were having. Being scared and not knowing if you can parent a child with a disability, thinking there is something wrong with you, feeling at fault. Wondering if your partner even wants to be with you. Anger because “why you”?As time goes on, those feelings will fade and you’ll get to know your child’s personality. The disability doesn’t take the center stage as much. It just takes time.
What quote do you live by? "Life is most transfixing when you are awake to diversity, not only of ethnicity, ability, gender, belief, and sexuality but also of age and experience. The worst mistake anyone can make is to perceive anyone else as lesser." Andrew Solomon
Find Alyse on Instagram @flicks_on_fleek